Support groups for chronic myelogenous leukemia: adults, children and more
People with chronic myelogenous leukemia (CML) or friends and family of people with chronic myelogenous leukemia may find a support group helpful. Support groups can connect people with others who are going through a similar experience and provide an understanding of the specific challenges that people may face.
There are many different support groups for people with CML themselves or through a loved one.
In this article, we take a look at the benefits people can get from joining a support group and list a range of support groups suitable for adults and children living with CML as well as their family and friends. There are also culturally competent groups and those specifically for those in the LBGTQIA + community.
Learn more about how to cope with a cancer diagnosis here.
Joining a CML support group can have many benefits for people with CML, as well as their friends and family. A CML support group can:
- offer mutual support
- provide a connection with people who have similar experiences
- give people the chance to speak freely about their feelings and to talk about their worries or concerns
- provide coping strategies and practical advice
- provide support to family and friends of people with CML and increase their bond and understanding with someone going through CML
- provide information, education and resources
- make people feel less alone
Discover the different stages of CML here.
The following support groups may be beneficial for adults living with CML.
The CML National Society: CML Connection
CML Connection is a support network that operates groups across the United States. Support groups welcome anyone with CML, as well as family members and caregivers.
The groups offer people a connection with others going through CML, the chance to learn and discuss the latest news from CML, and the opportunity to find out how the Society can better meet individual needs.
People can find more information here.
Cancer Care: Blood Cancer Patient Support Group
Cancer Care offers a free 15-week virtual support group for patients with blood cancer. The group is open to anyone in the United States undergoing treatment for blood cancer. An oncology social worker leads the online group, which aims to:
- reduce feelings of isolation and anxiety
- help people develop new coping methods
- increase feelings of hope and empowerment
- provide practical information for treatment and resources
- helps people improve communication between their healthcare team and loved ones
The group starts on October 1, 2021, but people can also register after that date. People can register here.
Leukemia & Lymphoma Society Support Groups
The Leukemia & Lymphoma Society support groups provide people with leukemia or lymphoma the opportunity to meet others who have had the same experience. They are open to anyone diagnosed with blood cancer, including patients, family members and caregivers.
Groups are free and usually meet once a month.
Learn more about leukemia in adults here.
The following support groups may be helpful for children or young adults living with CML.
Young adult survivors united
Young Adult Survivors United (YASU) has a support group for people between the ages of 18 and 39 who have been diagnosed with cancer. They provide local and national support to build a sense of community and help keep people from feeling isolated.
The support group currently holds two virtual sessions per week.
YASU offers financial support to those who meet certain criteria and offers grants of up to $ 500 to help cover the financial costs of living with cancer.
YASU also offers monthly social events, a book club, prayer group, and workshops. All support groups and events are currently virtual.
Other YASU support groups include:
- African American Young Adult Cancer Support Group
- the Co-Survivor Support Group, for anyone caring for or supporting a young adult cancer survivor
- the Grief Support Group, for anyone who has lost a young adult to cancer
People can find out more and express their interest on the website here.
While not a support group, Stupid Cancer does offer a range of digital dating for young adults to connect with other people having similar experiences.
Learn more about leukemia in children here.
The following groups offer specialized support to people belonging to specific cultural groups.
Latinas Against Cancer
Latinas Contra Cancer offers support groups for the Latino community. They run monthly support groups that offer psychosocial support groups in Spanish, for people diagnosed with cancer and their families.
Groups welcome and appreciate Latin culture and language. Support groups cover topics such as:
- the impact of cancer on the family
- improve communication
- balance physical and emotional needs
- understand mental health issues, such as depression
- anger and stress management
- intimacy and cancer
- spirituality and cancer
Latinas Contra Cancer also hosts community events, such as free spa days and family events to encourage self-care and a healthy lifestyle.
Latinas Contra Cancer is based in Santa Clara County and people can find more information on their website.
Cancer Support Community: African American Fellowship
The Cancer Support Community African American Fellowship is a support group for anyone who identifies as black or African American. The group welcomes people diagnosed with cancer as well as family and friends, or those who have lost a loved one to cancer.
The free virtual support group operates twice a month. Meetings take place on Zoom. Professional facilitators lead the group and people will first have to register via the form.
The following groups can provide support to adults or children in the LGBTQIA + community who are living with CML.
Cancer Support Community: Pride Cancer Support Group
Cancer Support Community runs a Pride Cancer Support Group for members of the LBGTQIA + community. The group is aimed at people diagnosed with cancer and their loved ones, and welcomes anyone who identifies as:
- any other sexual or gender minority
The group meets almost every month. People can find a local group for them here.
Young Adult Survivors United and F Cancer: LBGTQIA + Support Group
Let’s F Cancer and Young Adult Survivors United have come together to provide a support group for anyone who identifies as LBGTQIA + and is in post-treatment or being treated for cancer.
The support group aims to provide a safe space for people to share their experiences and find a sense of belonging, compassion and comfort.
The group meets virtually on Zoom every month, starting May 4, 2021. A licensed oncology social worker leads the group. People can register here.
The following support group may be helpful for friends or family of people living with CML.
The Leukemia & Lymphoma Society Family Support Groups
The Leukemia & Lymphoma Society (LLS) offers support groups for people affected by blood cancers. The LLS Family Support Group provides a warm and comfortable environment for families to discuss their feelings, learn and share information.
LLS Family Support Groups are free and usually meet once a month. Two healthcare professionals lead the group, who have experience in oncology and group work and can deal with sensitive topics.
The LLS currently has 130 local groups across the United States, and people can use this search tool to find one in their area.
Learn more about home care for leukemia here.
Support groups can offer a range of benefits to people who have been diagnosed with CML, as well as to family members, friends and caregivers.
Support groups are not a substitute for any form of psychotherapy, but they can be a valuable coping tool and source of support.
Support groups can help people feel less alone, connect with others, express their feelings, and get practical advice.